DS #1 and I went to Johns Hopkins today for a yearly eval with the neurosurgeon. DS had a three hour MRI first, then he had a break before the appointment, so we headed back to the Children's House to clean our room, pack, and grab some lunch.
We were fortunate enough to get space at TCH last night. They are in the middle of some renovation and a part of the house is shut down to guests. So thankful they had space for us since the first appointment was at 6:45a.m.!
Looks good. The Brain Tumor Board still has to review it next Teuesday, but the preliminary report was good. Tumor is stable, Chiari is stable, slight enlargement of the thoracic syrinx likely but not needing surgical intervention yet.
Poor boy got horribly sick on the way home from the hospital. Keeping him home Wednesday...
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